Arimidex - Coping with the SE's
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I slept rotten and had to get up to go to the bathroom a lot even before Arimidex (plain old 'real' menopause). My theory is it's because you are not sleeping deeply enough, so that your brain isn't all the way tuned out to your bodies signals. Without a sleep aid, I'm up every couple hours in the bathroom, when I take a sleeping pill I'm up once. So, I often do take a sleeping pill.....my one addiction!
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One note about effexor -- it is not an SSRI, and it has been found to be the safest med to take with tamoxifen. As with all these meds, there is a hit and miss quality to them.
I am also on the zoladex/arimidex thing and have been having killer hot flashes, but in the last few days with cooler weather its been a bit better. I'm wondering if this is a side effect that willimprove after summer.
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Here is a thought after reading MTG's post; if you can think of people who were pretty regular on the 'old' arimidex thread who haven't shown up here yet, you might want to send them a PM and let them know where we are.
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It has been such as hot summer that even my CATS are having hot flashes
! But seriously, I think that hot weather does trigger and make them worse and I think you will find them more manageable once it cools off. Now I am glad to live in a state with a long cold winter! 0 -
Anyone else have toe/foot numbness as se's of Arimidex, I have been taking almost 7 months now and the last couple months, my two toes next to little toes were numbing...This week it has now spread to at least three toes and ball of foot....also slight lower back pain....Any suggestions are appreciated.....
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Hi, I usually don't post very often ( once in a while on LE thread, as I also have Le ) Anyway I am on the downslide of taking arimidex. I have 10 months to go for my 5 years. May 31, 2011 to be exact (not that I'm counting or anything ) LOL I have the usual aches and pains, but I'm also 65, so that might have something to do with it. I have minor hot flashes during the day and night sweats which I must sleep thru, because I only notice my nightgown pretty damp some mornings. It doesn't wake me up anyway. When I first started , in fact about 6 months into arimidex, I couldn't lift my leg to put on my socks and could hardly walk. But that subsided gradually so that I hardly noticed that I was getting better. I must confess I blame everything on Arimidex. But right now I must say I am a little stiff, have the minor hot flashes, creaky knees, but overall feel pretty darn good, and I am alive. so anyone just starting, I would say keep on plugging, it does get better, or else we just adjust to the new normal, I don't know which. But I also know that it is doable. I don't know if my onc would recomend more than 5 years, if I would keep on it or not. Hopefully I won't have to make that descision. Just my 2 cents worth. By the way, lowrider, I am in Mn too. Sharon
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I've go the foot/toe numbness from chemo. It hasn't gone away and it's been over a year. Although I did have it in my hands and that has cleared up. The numbness is no better or worse with Arimidex.
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Regarding effexor As some of you may know from way back LIKE almost year and half ago I wanted off effexor,,had been on it for about 6 months,,,REASON ~~~ruthbru you gonna love this to jump start my libido,,hahhaha well that was difficult to get off that med ,,INSOMNIA with capitals!!! but I did it! gradually ,,Ask if you want to know how I got off it gradually ,,Going off it did not help libido but that, too ,is long ago story how I got that back!!! I thought recently I had SE of the blues but think maybe heat and humidity ,,but still not sure TY God they are gone,,lasted about 3 weeks,,,For those with hotflashes I was one who when I got BC diagnosis had to rip my double dose estrgen patch off and then take arimidex ,,kinda abrupt EVEN at my age!!! ANYWAY the 15 + a day HF's subsided after about year and 1/2 what a surprise and I mean let up !!!!! I have so very few now . Hang in there I hope it happens for all of you suffering from them!
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oh and PS take one 25 mg benadryl for sleep aide,,Cousin doc recommended that BC,,,,before cancer!
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Hello Ladies,
So very glad to be back in the groove with the A team...I quit the other thread months ago and checked back at the right time. It had been getting out of the theme a long time back.
I too have had trouble with eye dryness. Here is what was recomended to me....Use a gel eye drop,they last longer.At bedtime a couple of times a week I use a eye ointment by Clear Eyes...I keep it on my night stand...it WILL give you blurey vision for a few hours. It really has worked wonders for me,I had mornings that my eyes were literally stuck shut because of lack of tears.
Lately I have had cramping and pain in my baby toe and down the side of my foot at night...I have gone back on the Gabapentin at night and it seems to be helping. It has been in the 90's here the last few weeks which helps with some of the aches and pains.
Lakewoman,nice to see you back...like you,at 60 I am so glad that with all the SE at least I know that on a bad day I can at least look forward to a good ole roll in the hay so to speak to get the endorphines running.
I also use benedryl at night....when added to the Gabapentin I sleep like a rock now and it also gets rid of the night sweats.
I have now been on Arimidex for 1 year officially on Saturday. If I would not have found all of you I am certain I would be confind to a chair in a severe state of depression. My ONC in Seattle marvels at all of my home remedies and I give all the credit to "my team" My thanks to all.
Think I will read for a while and then head for bed. Blessings to all.
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thanks Ruthbru for answers to my questions. I start rads wed.. getting the 2 zaps a day for 5 days version so I will be finished next week. Rad onc Dr. said I will have some burns because of where theyhave to shoot - bottom of breast in the fold which always burns more. So will deal with that. A is not bothering me since i changed time of day to take it. I have been having nite sweats but it is 105 in the day time here and only down to 95 or so at nite. Course we have AC but still....... so dont know if I can blame it all on SE's. will let you know how the rads go in a few days.
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Good luck with the rads, jet. I was zapped in the fold too but did OK (although mine was spread over 6 weeks). Put whatever ointment they tell you to use on religiously from the start (not before, but bring the tube with you into the changing room so you can smear it on right after). Looks like just about every place in the country is boiling hot at the moment. Even with AC the air just feels heavy.....night all! Ruth
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Jet - This will sound strange but you might want to ask your doc if immediately after each rad treatment you can wipe down the radiated area in a diluted solution of cold water and cold Apple Cider Vinegar and then later on in the day use the same sort of solution on a washcloth to soak your breast. Vinegar, esp Apple Cider Vinegar (ACV) is traditionally used by labs to wash down skin that was accidentally exposed to radiation, it rids the top layer (not deep tissue) of it. ACV is also anecdotally used by many for burns and sunburns. I researched it, showed the research to my radonc, got the okay to use it and had very little burning. If you're interested, PM me and I'll send you the research. In any case, good luck with rads.
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Hi everyone, I have been on arimidex for 20 months now, and have hot flashes/sweats and joint pain...recently my muscles have started to ache...the worst is the joint pain, i took a 2 wk arimidex vacation with no relief...my asthma flared up last week and saw my primary dr who put me on steroids....wow, did i feel great, absolutly no joint pain, no trigger fingers, no muscle aches!!! I realize steroids are not good for us long term, but........why cant it be prescribed for a vacation...so to speak???? The pain builds to a point that emotionally I feel defeated, and ready to go off the arimidex....but last wk, i was able to regain a positive outlet, and stayed on the arimidex....i am curious if anyone has ever discussed this with their onco??? i intend to next month when i go in for my 6 mo f/up....again, i know steroids cant be used long term....but, i have been given the arimidex with few options for se....any other thoughts????
karen
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Hi CrissyB - Thanks for the welcome
I have 3 numb toes from the chemo - no worse from the Arimidex. I'm not really noticing any worse joint pain yet - having bad knees keeps me in pain anyway. My DH has noticed I'm very restless at night, but that could be hot flushes while I'm sleeping. I've always had to get up a couple of times in the night to pee, so that's normal for me.
I have discussed the possible joint pain from the Arimidex with my onc - he was very worried I would have it. He said to take fish oil and glucosamine (for my knees), which I do faithfully every day. He has certainly not offered any other medication. I did ask about steroids but he said the SE are too serious. Lucky I haven't had any extra pain, maybe the fish oil works.
Sue
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Exercise helps to minimize the creakiness and joint pain (really, it does).
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I had neuropathy in my fingers and feet from Taxol. It's slowly gotten better but stalled out; no improvement all summer. I hope that's not an SE from A that I'll have to deal with again; I agree with the recommendations to let your dr. know.
I take Neurotin (gabapentin) for my neuropathy but I know it also helps keep my joint pain down. Another pain med to add to your list to ask your dr. about!
My back, hands, and joints have been creaky again the last several days, much more so than in recent weeks. Ratz. I was hoping the pain had stabilized but I know from others here that it can come and go; guess I'm in a "pain" cycle.
I take vit. D3 (1000-2000 iu/day), which also helps, and am going to check into fish oil and glucosamine... want to make sure neither will interfere with my other meds. Oh, boy, more meds, because 18 pills a day isn't enough
And, as mentioned, exercise really does help. Moving helps. If I have to be still for long periods of time (at a desk, traveling, etc.) I try to make a point of getting up and moving around for a few minutes; otherwise my joints really nag at me, especially knees. Oh, and I've noticed low chairs are harder on my knees than ones where my knees are bent no more than 90 degrees.
Thanks for mentioning water, lowrider; I realized yesterday I haven't been drinking as much as usual. I'll up that and see if it helps with my current round of pain.
I envy those of you with any sex drive at all. Mine disappeared around when I was dx and I don't have a shred any more. Not that I have anyone to share it with, but still... one can hope
Glad y'all are here.
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Hi All~ Glad this thread was started. I have been on they almighty "A" since January 1st. I do have aches and pains in my feet and joints....my hands and fingers are stiff. I did take prepackaged foods out of my diet along with refined sugars. I see great weightloss and some of the discomfort is gone. I did put on the other thread that I went to get my prescription when it first went generic and is was just a little less than the regular but the other day I went to get it and it was only $2.96. I sure hope the generic is going to do its job. I have sometimes not had success with generics (thyroid meds)
Enjoy your day ladies
Balsie
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Question for those taking fish oil:
How do you know the supplement you take won't make you smell like fish (I understand some do, some don't)?
Do you try to balance EPA and DHA?
How many grams do you take a day?
Did you take it before A or start after? If after, did you have a clear reduction in pain?
Finally, how did you chose a brand so you know it's safe from contaminants like mercury, PCB's, etc?
Thanks!
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Hi ya'll...on the subject of low chairs...it reminded me of something I did - one of my toilets was in need of replacing so shopping I went. Since getting on and off the pot was becoming an adventure, I thought, why not see if a taller bowl would help instead of the standard 15" where you end up with your knees higher than you butt (I am 5'8"). I purchased a 16 3/4' tall bowl. Well, after my first 'sit down', I was totally amazed! The going down part was easier and my knees where level (perhaps a tiny bit higher than my butt) - comfortable! The getting up part - wow, what a difference - that 1 3/4'" is HUGE! I went out the next day and purchased another one for the other bathroom! My knees have happy potty trips (well, once I get there anyway...lol)!
Where else but here can we talk about this sort of thing....and Lakewoman...someday you MUST tell the ladies how you got your libido back (many husbands would love you).
Hugs
LowRider
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I do plan on seeing a specialist for my dry eyes just to make sure that is what the problem is. Until then I am using moisturizing eye drops and they have helped somewhat.
I am now wondering too if my hot flushes are somewhat due to the hot weather we have been having. Although I am in AC most of the day I get this feeling of warmness come over me when I am just sitting still and start sweating a little. Would you consider that a hot flash? I call them hot flushes because I am not drenched in sweat. I am hoping that when the weather cools off they will ease up.
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I call the melting moments.....lol
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I am having libido problems too. Main Squeeze is out of town and I am crawling the walls!
The point is that I have not noticed a major change. I do want to point out that much of this is in my brain, and of course how I feel about myself. I think I might feel differently if I had lost a breast, but I am only a bit uneven. I had a wonderful breast surgeon.
The rest of my body looks just great. Right now, I look fit and healthy. I have lost most of the weight that I had gained about 4 years ago. My hair is now at the point where it looks cool as opposed to "post chemo". I made sure I colored it as soon as I could.
I feel wonderful, both from all the long distance cycling events and fact I have work headed my way. So am back in my game. So not just Main Squeeze, but I got chatted up cycling 2 days ago by a guy a lot younger than I am.
I think that a lot of the libido goes back to feeling whole as a woman. I know there are physical things going on, but if your libido is intact, you will work past them. Here are some of the things I do. Most of those are sensual.....
- Exercise. You need flexibility and endurance. There is a reason other than vanity I do those leg lifts with my exercise ball.
- Nice bath potions. I favor Body Shop, but have others. Smelling nice is wonderful. I also soak what hurts such as after my 50 mile ride on Saturday.
- Certain foods are also highly sensual. It can be a real pastry or the perfect piece of fruit.
- The right underwear including bras that do something for you. I had to change bras to wear my uber cool T shirt last night. Then it looked just right. I have a couple of pairs of silk undies too.
- Perfume. Yes, you are worth it.
- Sheets......reminder to swap out my ratty ones. But you want to sleep in something divine. And 100% cotton, although I did once have a vintage linen top sheet.
- AM coffee or tea. Not the place to economize. Wake up to something sensual and wonderful.
- Do a clothes edit. If it doesn't make you feel wonderful (or is a basic you absolutely need) get rid of it. Fewer clothes that do something for you. The French are masters at this one. We tend to go for quantity. My big investment recently was to upgrade my cycling wardrobe. Now, I can actually find the stuff I wear.
- Note on clothes. It usually has to FIT for you to feel fab in it.
Finally, get your husband or SO to do a massage. Guys are usually really good at finding the places that "brighten you up" and working their way down to the appropriate spots. It may take several sessions to get there, but I would expect this all to end in some "action". That is the goal......to get back in the groove.
Fortunately, I never left it. Lakewoman can probably be more helpful here.
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On hot flashes or just plain feeling miserably hot.....
One of the reasons I live in Seattle is that I hate hot summers. This has been true since I was 20, and I couldn't stand hot days growing up in Vermont. I find that exercise really helps my body regulate temperature. So does drinking enough fluids.
So all those summers I lived north of NYC, I would go out cycling early in the day on weekends.
Here in Seattle, it's easy to go swimming with tons of public swimming beaches. So I cool off that way. Have not needed to this year, but last year, on the one really sweltering day, three friends and I hung out underneath a tree next to Lake Washington. WHAT heat wave????
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One more question:
Anyone use aspercreme or something similar,and does it work? I'd rather use something topical than take pain meds.
I'm not unhappy with my body (although I'm working to get into better shape and lose weight). I'm just used to having a spontaneous sex drive, and I have none. I wonder if age is a factor, not that I feel old, but I went through menopause 15 or 16 years ago but was on estrogen until a few years ago (yeah, I know), so I know I'm not classified as young any more... Claire, I already do a lot of the things you suggest, and I agree, feeling good is certainly one key. Again -- no one around to take advantage of it, but again -- I can hope! So any help is appreciated!
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Aspercreme and I have been tight for quite some time. Yes, I use it on my knees when doing long rides, and I take ibuprofen.
A year ago, I was using Aspercreme and a herbal concoction on my right shoulder as well as taking aspirin so I could sleep at night. This was just prior to diagnosis. I had pulled my shoulder doing a high country x-country ski event six months earlier. I thought the ski pole would hold me in deep snow, and it didn't. (My shoulder is just fine now.)
I did not use it on my sore glutes. I would give it a try. I find the relief lasts about 6-8 hours.
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Great to hear about the aspercream, I'm buying some today -- thanks, Claire!
I'm with you on the weather in the NW and I miss the NW -- tell the mountains hello for me!
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I take liquid fish oil - 1 teaspoon a day - beats taking lots of extra tablets. The hot flushes are way worse than when I went through menopause 5 years ago but I just ride them out. It does help being winter over here. Exercise is a good idea but I've been avoiding getting back on my bike - something I really need to start doing. Walking is out because of my crappy knees. Must go back to the gym too - one day
Sue
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I have not found any joint pain relief from walking....hurts the hip joints too much, but i do find relief by getting up frequently...not staying down too long. i will give the fish oil a try, and plan to talk to onco about the steroids....it would be great to have a week with no pain and stiffness for my sons wedding, or a much needed vacation!!!! the only se i had from them was not sleeping..ha ha....thats normal with the arimidex and no hormones...lol my asthma only flares up when i get around things that irritate my lungs, so i avoid those things, and rarely have trouble....my 5 yr old niece sprayed a can of body spray, and must have sprayed out half the can before i could get to her.....such a girle girl
hugs to all, karen
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Nature grrl- on fish oil- I take 4000 mg a day and have since before dx- I already had pain issues and it has been helpful for me for both pain and anxiety. I believe you want to have somewhat more EPA than DHA (maybe not quite double?) but the important thing is to make sure you're getting enough of either- I was told to look for a brand that had at least 750 combined per serving (often 2 pills). Good brands will say on them that they are PHB etc free. I take Nordic Naturals brand which have 1280 mg combined EPA/DHA per 2 pills which is the highest I could find. They aren't cheap though!
Oh and- I don't think I smell like fish! I hope not! But I've never heard of this. I wouldn't worry.
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I have noticed my hands feel a bit funny when I wake up - like they've gone to sleep and a bit crampy. I asked the onc about it today - looks like it could be the Arimidex. I just flex my fingers and they're fine.
Sue
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Ouch, so much pain last night that I lost sleep: knees, elbows, wrists, thumbs. Aspercream helped me fall asleep; woke up with one really bad wrist but otherwise better.
suepen, I've had that same experience, although the last few days it's been WAY worse. This morning it's only my left wrist/thumb so I'm wearing a new designed-for-women, left-hand-only brace (my old brace is for either hand but very clunky; couldn't type with it). I hated paying the $ but it is very comfortable and it's saving me a ton of pain.
jessimine, thanks for details on fish oil. I'm going to look at brands later today.
lowrider, I hadn't thought about toilets (I don't know why, because as you said, they can be hard on the knees to stand up from (all English teachers ignore that sentence)) but that's a great idea. When I was buying my wrist brace this morning, I noticed "seat elevators" that sit on top of your toilet and raise it by about 5" -- that might be a great, easy fix for some of us.
sunflowers, I wish Arnica gel worked for me, I've tried it several times at a friend's urging.
Oh, and Claire, a PS, I was thinking about some of your comments about sexuality last night, and wanted to thank you for the reminder that even if there's nothing sexual going on in my life, I can still enjoy sensual things! I know that wasn't exactly your point but it was good for me to remember.
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I wonder why so few doctors seem to prescribe Aromasin instead of Arimidex. I just switched from Aromasin to the generic Arimidex due to cost ($270 versus $20...duh!). And the side effects were SWIFT! Doc gave me a note with the script that said "May experience more aches and pains at first". If they KNOW Arimidex has that much more bone pain...WHY prescribe it? I see NOW, that there is a reason-cost. But I feel SO lucky that I got Aromasin for the past few years instead.
On Tamox - I had debilitating fatigue, hot flashes, and manageable bone pain.
On Aromasin - the fatigue lifted a LOT, almost zero bone pain, but lots of hot flashes.
I took ONE generic Arimidex and that night my wrists started aching. And it hasn't let up since! CRAZY how fast that happens. I assume it's then probably also much worse for your bones than Aromasin. I had a bone scan when I started Aromasin, and after 2 years. All is well.
I'm not going back to Aromasin - can't, due to cost. I can handle the bone pain. But - geesh!
I'm sure this has been mentioned a thousand times. But I just went out to get Tylenol. Happened to glance at "Arthritis" Tylenol, wondering what it was. Hey - it's just stronger! 650 mg instead of 500. Yep, I snapped some of that right up!
Luck to all.
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whatnow....I had worse joint pain on Arimidex as well as CTS...but on Aromasin, I had worse insomnia, more memory and cognitive problems, developed tendonitis (surgery on both wrists), more depression etc....Aromasin is typically not Rx till you've taken tamox or another AI for a period of time..... As far as cost, I'm lucky my insurance has paid for both except for my copay....now that Arimidex is generic, I'm sure if I was taking that, they would Rx the generic version.....but for now, I am enjoying a break from all AI's....as bad as the joint pain was...I think I rather deal with that than the cognitive and mood impairments I had on Aromasin....
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Really shows that everyone's body responds differently to different pills/treatments etc.......ALL the anti-hormonals should be generic, so that a person could feel free to experiment with what would work best for them and not have to base their choice on the cost!
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Arimidex just went generic the first of July 2010. Until then I was paying $388. / 30 pills and that was a little less than full price due to insurance. So price was not a factor in RXing one over the other.
pam
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Hi sweetie pies! Thank you for keeping the thread up and running....in answer to a few posts back, yet, you can just go to the profile page of whomever and hit the "block this person" button and it will just show up blocked. Hope that helps?
I have this bizarre o thing going on since lack of estrogen. I had a hysterectomy and an oopharectomy and my vaginal walls are falling in (great, huh) calling it a "prolapse"....it can be treated with estrogen pills (ha ha). Arimidex is keeping all the estrogen away, but it's not that bad.
I am waiting on thyroid results (mine went wacky on me, first too high, waiting to see if it's right now) and I will absolutely ask about vitamin D when I see my onc.
Did anyone else see the news story on Fox and all over the media re: calcium supplements and heart issues? Going to ask about that one too.
I was told no no to generic arimidex, as it hasn't been out there long enough. I get mine from Canada at half price anyway, name brand, same cost as generic would be here in the states.
PM me anyone for how to do it....I get it by mail and it's great, so far!
Have a lovely day gals. I second the treadmill and elliptical or walking.
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anniealso: Who or where did you get the info that generic Arimidex is a "no no"? I would be more concerned getting mine from Canada where I was told they do not have the same FDA regulations as we do in the US. Even if they are in Astra Zeneca packages, AZ themselves told me they do not have to follow the same "quality regulations" there as they do if made here. I guess that is one reason they can be sold so much cheaper.
Also, what good does it do to get generics of "any" drug if we are going to be afraid to take them?. My feelings are that as long as I research the company making the generics and they are qualified without a lot of problems on their records, I am not concerned about using their meds. In fact, if you have a mail pharmacy with your insurance, you are probably using drugs from the same companies now putting out generics for Arimidex. I use the TEVA Anastrozole and have other TEVA meds I have been using without any problem for quite some time. I just got a refill on my generic Clonazapam and it is made by Mylan also another maker of Anastrozole. I could go on and on but my point is that we either trust our FDA and the manufacturers of all these generics or we don't. Just because a few people have a problem with a certain drug does not mean everyone should discard their pills. I cannot take the OTC drugs like Advil etc. or even an aspirin due to my stomach problems yet millions of people receive great pain relief with these drugs.
I for one, am not going to waste time waiting to see who if anyone has a bad side effect from the generic I select. I am just grateful after all these years, we finally have access to Anastrozole at affordable prices and I will continue to take the pills I have chosen to use. We are fortunate to have about 13 or more companies to choose from so I suggest people do their homework and then use the manufacturer they feel more peace of mine with.
BTW, have they made it legal yet to get your pills from Canada?. I was told it was not passed yet when I contacted my Washington reps before Arimidex became generic. Now I don't have to be concerned about it but was just wondering.
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No offense taken, sunflowers
I just got back from looking at both and decided on the capsules -- I know it's not as cost-effective and that had me hesitating -- but I don't like fishy taste anyway, so I decided there was no point buying something I wouldn't take if I couldn't stand the taste. I was glad to see Nordic brand and I'm hoping this helps; if not with joint pain, maybe with some of my other issues! Generics have the same active ingredient as the brand Arimidex; I realize there may be quality control issues from some countries/manufacturers -- but I've been taking generics of scripts for years with no problems and am failing to see why this should be any different. There are different inactive ingredients, yes, and some small percentage may react to the difference in those -- but most won't.
I read the calcium supplements/heart attack research, but it begs a lot of questions, which maybe I'll get to another time, but my wrist is saying I've had enough typing for now!
I, for one, won't rush to stop taking them. 0 -
Hi ladies. This is such a nice forum. I just wanted to jump in the pool here--i've been on Arimidex for 5 months. Had side effects immediately--mostly terrible, terrible joint pain. I was sure wishing I had one of those toilets that are taller. Getting out of bed was really tough as was almost everything. after a while, I was so desparate, I decided to cut out all sugar and it worked! I can't believe it. Just wanted to pass that along in case it can help someone else. Finished last chemo last week and had my port out last friday. So its Arimidex now and thank god I can take it!
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I think between them, Claire and Nature have made a wonderful point; we should be doing things that make us feel good, happy, and even sexy, and doing them for OURSELVES (if there are other people who enjoy the results; well, lucky for them!
). Light those candles and take a bubble bath, get a regular facial, massage or pedicure, get a great haircut (or wig, or scarves or go bald with big hoop earrings and red lipstick), wear sexy lingerie (even if nobody else knows, you know you're wearing them), buy some fun new clothes, get a makeover (if you are in active treatment, be sure you do an American Cancer Society 'Look Good/Feel Better' event). Really celebrate all the good things about yourself.....something we can easily lose sight of with all the yucky stuff! 0 -
I was so excited thinking of a candle light bubble bath, that I accidentally copied this post twice! Sorry about that.........
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Question: so I had a flare-up of joint pain earlier this week, still tolerable except one night I had trouble sleeping, and yesterday morning it was all a lot better except one place: now the bone(s) at the base of my left thumb into my wrist hurt so bad I can't use my left hand... at all... can't even get toothpaste out of the tube... it's like all the pain accumulated into one spot! I took lortab last night and that knocked me out so I slept but it didn't get rid of the pain at all. I'm taking ibuprofen this morning to see if the anti-inflam. piece helps any. My question is, is this kind of isolated, one-sided (not both wrists) normal with Al's? I would swear I have broken bones except I know I don't. I'm hoping it subsides pretty durn fast (especially since I'm taking a few vacation days but how much can you do minus one hand?) (I can't even close my car door with my left hand). Any thoughts? I started fish oil last night too but don't expect immediate help from that. I don't want stronger pain meds because I want to be able to function. Crapola.
Ruth, great post, and your bath post made me laugh
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Ruth- great post. Sometimes we do forget to do things for ourselves that make US happy. Thanks for reminding me!
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Would it help if you massage it? What about ice and massage?( I know that sport trainers are using ice, staying away from heat pretty much all together.)
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I did ice it last night and that helped for a short while (it felt so good to have cold on it!) but when the pain came back it was still bad. I'll ice it and massage it again later. I really don't expect it to last, Pollyanna never gives up! but boy is it bad. Complete empathy for those who've had unbearable pain in many joints. At least I can still walk!0
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Keep icing it on and off all day and take an asprin (asprin goes straight to the source of the pain).
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Thanks, Ruth. I will!
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I will send you my bill! 0
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any chance that it is trigger thumb? That's a known se. It's really the base of the thumb that is affected where it joins the hand. If it is, you don't want to leave it too long or it can have some longer term consequences. Worth getting it checked out.
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